Spouse's Coping In Caring For The Elderly With Dementia | Pradana | Jurnal Kesehatan Prima

Spouse's Coping In Caring For The Elderly With Dementia

Anung Ahadi Pradana(1*), Junaiti Sahar(2), Henny Permatasari(3)
(1) STIKes Mitra Keluarga
(2) Universitas Indonesia
(3) Universitas Indonesia
(*) Corresponding Author
DOI : 10.32807/jkp.v15i2.610


Dementia is a condition that is still considered normal in the elderly by the general public. Dementia clients often experience hopeless situations that include feelings of helplessness, frustration with their surroundings, economic dependence on family members, and inability to socialize with other people. Most dementia clients are cared for at home by family members due to financial limitations and supportive health services. This research is qualitative research with a descriptive phenomenology approach. This research was conducted in the period November 2018 - May 2019 in the Bekasi City area and the number of participants obtained by the researchers was 10 people. The theme obtained by the researchers was how the coping mechanism carried out by the carer while caring for the elderly with dementia which was described in 3 themes, including care efforts made to heal a partner, activities taken to avoid boredom, and resources owned by caregivers. In addition, there is a need for socialization for the community about dementia and an increase in understanding for health workers who work within the scope of the health office as well as the development of dementia conditions that occur.


Coping;COVID-19; Pandemic; Vulnerable populations


Adelman, R. D., Tmanova, L. L., Delgado, D., & Dion, S. (2015). Caregiver Burden A Clinical Review. https://doi.org/10.1001/jama.2014.304

Allen, R. S., & Hilgeman, M. M. (2016). Family Interventions. The Encyclopedia of Adulthood and Aging, 1–5. https://doi.org/10.1002/9781118528921.wbeaa196

Bielsten, T., Lasrado, R., Keady, J., Kullberg, A., & Hellström, I. (2018). Living Life and Doing Things Together : Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia. Qualitative Health Research, 0(0).


Brown, L. J., & Bond, M. J. (2014). Transition from the spouse dementia caregiver role : A change for the better ? https://doi.org/10.1177/1471301214539337

C.-Y. Chiao, Wu, S., & Hsiao, C.-Y. (2015). Caregiver burden for informal caregivers of patients with dementia : A systematic review. International Nursing Review, 62(110), 340–350.

Clissett, P., Porock, D., Harwood, R. H., & Gladman, J. R. F. (2013). Experiences of family caregiver of older people with mental health problems in the acute general hospital: a qualitative study. Journal of Advanced Nursing, 69(12), 2707–2716. https://doi.org/10.1111/jan.12159

Conway, E. R., Watson, B., Tatangelo, G., & Mccabe, M. (2018). Is it all bleak? A systematic reviewof factors contributing to relationship change in dementia.

International Psychogeriatrics, (May). https://doi.org/10.1017/S1041610218000303

Harryson, L., Aléx, L., & Hammarström, A. (2016). “ I have surly passed a limit , it is simply too much ” : women ’ s and men ’ s experiences of stress and wellbeing when living within a process of housework resignation. BMC Public Health, 1–10. https://doi.org/10.1186/s12889-016-2920-5

Higgs, P., & Gilleard, C. (2017). Ageing , dementia and the social mind : past , present and future perspectives, 39(2), 175–181. https://doi.org/10.1111/1467-9566.12536

Ivey, S. L., Price, A. E., Tseng, W., & Logsdon, R. G. (2012). Experiences and concerns of family caregivers providing support to people with dementia : A cross-cultural perspective. Dementia, 12(6), 806–820. https://doi.org/10.1177/1471301212446872

Lee, C., & Tang, S. (2017). Health Care for Women International Relationship between housework and perceived happiness of middle-aged and older women in Taiwan — The moderating effect of health condition, 9332.


Liu, Y., Li, T., Guo, L., Zhang, R., Feng, X., & Liu, K. (2017). The mediating role of sleep quality on the relationship between perceived stress and depression among the elderly in urban communities : a cross-sectional study, 9. https://doi.org/10.1016/j.puhe.2017.04.006

Mazaheri, M., Eriksson, L. E., Heikkilä, K., Nasrabadi, A. N., Ekman, S., & Sunvisson, H. (2013). Experiences of living with dementia: qualitative content analysis of semi ‐ structured interviews. Journal of Clinical Nursing, July. https://doi.org/https://doi.org/10.1111/jocn.12275

Miller, C. A. (2012). Nursing for Wellness in Older Adults (6th ed., Vol. 91). Philadelphia: Lippincott Williams & Wilkins.

Øksnebjerg, L., Diaz-ponce, A., Officer, P., Ma, D. G., Hons, E. M., Dipcot, G. M., … Woods, B. (2018). Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research : A pan- ­ European consultation. Health Expectations, 21(April), 1056–1065. https://doi.org/10.1111/hex.12799

Papastavrou, E., Andreou, P., Middleton, N., Tsangari, H., & Papacostas, S. (2015). Dementia caregiver burden association with community participation aspect of social capital. https://doi.org/10.1111/jan.12762

Pozzebon, M., Douglas, J., & Ames, D. (2016). Spouses ’ experience of living with a partner diagnosed with a dementia : a synthesis of the qualitative research, 537–556. https://doi.org/10.1017/S1041610215002239

Tatangelo, G., Mccabe, M., Macleod, A., & You, E. (2018). “ I just don ’ t focus on my needs . ” The unmet health needs of partner and o ff spring caregivers of people with dementia : A qualitative study. International Journal of Nursing Studies, 77(September 2017), 8–14. https://doi.org/10.1016/j.ijnurstu.2017.09.011

Wadham, O., Simpson, J., Rust, J., Murray, C., Wadham, O., Simpson, J., … Wadham, O. (2015). Couples â€TM shared experiences of dementia : a meta- synthesis of the impact upon relationships and couplehood. Journal of Aging & Mental Health, 7863(November). https://doi.org/10.1080/13607863.2015.1023769

Wallace, M. (2008). Essentials of Gerontological Nursing. Geriatric Nursing (Vol. 18). https://doi.org/10.1016/S0197-4572(97)90051-3

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